shschneider33

This journey with our sweet Helen has been filled with many ups & downs, but we keep charging forward. First, we want to say THANK YOU to everyone who has supported Helen and our family since her devastating diagnosis of CLN2 Batten Disease on March 10, 2025. We have learned that support comes in so many different shapes and sizes. It can be a simple text or email, a phone call, a card, a prayer, a donation to HPSF, or simply a hug. However you’ve chosen to support Helen and our family, we...

We are excited to celebrate Helen's 4th birthday with you! Participate in the celebration by setting up your own PINK lemonade stand...

Spring has sprung, and the pinks skies are strong for our girl Helen. Helen's Pink Sky Foundation Team has been busier than ever since...